It pains me that anyone else has to go through this but at the same time I'm finding there is an amazing support system for me already in place.
While seeing my OB/GYN the other day I decided to visit the Breast Cancer center in the building. I spoke to a wonderful social worker who has been sending me websites and other resources. I've begun talking to people on message boards and finding other bloggers who have told their stories. Many of whom are just as young if not younger then I am.
I also learned a new word.
PREVIVOR: A person who is not diagnosed with cancer, but has survived
the predisposition, or higher risk, of cancer due to a genetic mutation
and/or strong family history. After being armed with this information, a
previvor can make informed choices prior to a cancer diagnosis.
And here I am, making an informed decision. I'm still met with questions about why I'm choosing to do this. I take one look at my husband reading to our son and know exactly why I'm doing this. It's going to be a difficult road both emotionally and physically. Just getting to the surgery is going to be trying emotionally. I'm very lucky to have a supportive husband and family.
I hope I can help others by writing about this in my blog, just like seeing so many other stories are already helping me.
7 comments:
I know exactly how you feel! I felt like I was alone too, but found such a wonderful support system. By posting my blogs on Facebook I realized there are so many friends and family behind me! I'm about two months away from surgery myself and am slightly nuts ha ha. This is your first post I've read, so I need to go back and catch up! I'm here if you need me!
Michelle
Thanks, my blog has a lot of other stuff...
and it's only recently that I've been talking about the surgery because we were able to put a concrete time on it.
I'm hoping I can balance my regular blog with talking about my surgery...mostly because it is my everyday life.
I understand your feeling you. But don’t worry about this thing many people have this same disease but they did not want to share it I appreciated your courage. You just need to enjoy your life.
I got your blog from the BRCA Sisterhood Facebook group... I think I left a comment a few under you in that discussion. :)
I totally understand dealing with all this BRCA stuff... It's SO HARD dealing with people saying "Why would you do that?!" or "Just wait, you may not even get cancer!" when your mind is made up that surgery is the right choice. I haven't had any surgery yet but I'm probably waiting a few years.
I got your blog from the BRCA Sisterhood Facebook group... I think I left a comment a few under you in that discussion. :)
I totally understand dealing with all this BRCA stuff... It's SO HARD dealing with people saying "Why would you do that?!" or "Just wait, you may not even get cancer!" when your mind is made up that surgery is the right choice. I haven't had any surgery yet but I'm probably waiting a few years.
I know exactly how you feel! I felt like I was alone too, but found such a wonderful support system. By posting my blogs on Facebook I realized there are so many friends and family behind me! I'm about two months away from surgery myself and am slightly nuts ha ha. This is your first post I've read, so I need to go back and catch up! I'm here if you need me!
Michelle
I understand your feeling you. But don’t worry about this thing many people have this same disease but they did not want to share it I appreciated your courage. You just need to enjoy your life.
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